A Facebook post from a desperate Wisconsin mom caught the attention of 30-year-old Lindsey Bittorf. The mother's post was a plea for help - her 8-year-old son Jackson needed a kidney transplant. A donor needed to be found, and quickly.
Bittorf, herself a mom and an active member of the local police force, was touched by the plea. She was one of about 50 people who voluntarily got themselves tested to see if they were a match. To the surprise of doctors and all involved, Bittorf matched Jackson's blood type and three other antigens. Bittorf and Jackson are not related, and in fact never met until the match was confirmed.
Their meeting was punctuated by hugs and tears. Bittorf is humble about her decision. She gave Jackson a plaque which says, "Jackson, I took an oath to serve and protect my community. My kidney will now be able to serve and protect you! I am your kidney donor."
Showing posts with label chronically ill children. Show all posts
Showing posts with label chronically ill children. Show all posts
Tuesday, May 23, 2017
Thursday, May 11, 2017
Girl with chronic illnesses founds a non-profit to bring smiles to hospitalized kids
Kayla Abramovitz and her brother Ethan know a thing or two about hospitals. Both have had extended hospital stays because of chronic illnesses: Crohn's disease, Juvenile Rheumatoid Arthritis, and Eosinophilic Esophagitis.
When Kayla was 11-years-old, she wanted to help some younger patients through their long, frightening, often boring hospital stays, but she was too young to volunteer. She noticed some Thomas the Train DVDs on her own shelves at home and had an idea.
With the help of her family, Kayla Cares 4 Kids began with a goal of collecting 100 donated DVDs for Niklaus Children's Hospital in Miami. That was four years ago. Kayla Cares 4 Kids, now a 401c3 non-profit, has collected over 14,000 items to date, including DVDs, electronic hand-held games, and arts and craft supplies. Donations are dropped off at collection points in Florida and New Jersey, and have been enjoyed by kids in children's hospitals and Ronald McDonald houses in all 50 states, Washington DC, and Puerto Rico.
Now 15, Kayla has won numerous local and national awards for her work. She works as hard as ever to "help sick kids feel better one smile at a time."
When Kayla was 11-years-old, she wanted to help some younger patients through their long, frightening, often boring hospital stays, but she was too young to volunteer. She noticed some Thomas the Train DVDs on her own shelves at home and had an idea.
With the help of her family, Kayla Cares 4 Kids began with a goal of collecting 100 donated DVDs for Niklaus Children's Hospital in Miami. That was four years ago. Kayla Cares 4 Kids, now a 401c3 non-profit, has collected over 14,000 items to date, including DVDs, electronic hand-held games, and arts and craft supplies. Donations are dropped off at collection points in Florida and New Jersey, and have been enjoyed by kids in children's hospitals and Ronald McDonald houses in all 50 states, Washington DC, and Puerto Rico.Now 15, Kayla has won numerous local and national awards for her work. She works as hard as ever to "help sick kids feel better one smile at a time."
Monday, October 17, 2016
The power of dance
Dancin Power got its start in 2006. Typically, the bright, energetic dances focus on Hula, traditional Brazilian dance, and hip hop, full of spirited music and fun movements. Classes may be held in the patients’ hospital rooms, in groups or individually. If the child has a low immune system or other frailties, the dance instructors may wear masks, gown, and gloves to the bedside and deliver the lesson right there.
Loved ones are welcome to join in. "By having the whole family, and at times their doctors and nurses too participating, we create community, a very supportive and fun one,” Deonizio said. She loves to see the child's laughter and joy come out through participating in the program.

“For that moment, the patients and their families are able to interact with one another in a non-medical way,” Deonizio told The Huffington Post in an email. “They are laughing, learning something new, having a good time, feeling happy together!”
The doctors and hospital staff are thrilled with the program. Dance, in whatever form is medically safe for the child, improves muscle strength, endurance, and mobility. Plus it boosts the child's mood through the sheer joy of self-expression.
Deonizio feels the benefit too. “Every time I teach I learn something new from my students/patients,” she told HuffPost, “...being completely present, appreciate the moment, have gratitude and never give up.”
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